Penn Sarcoidosis

Kişiselleştirilmiş aracı sarkoidoz hakkında bilgilendirici kaynaklar sunmak için.

This app is a personalized tool designed to deliver informational resources about sarcoidosis, supplying links to disease information and advocacy groups, as well as information about local specialists and support groups. Users also have the ability to opt-in to a research study, which will provide researchers with important data about this rare disease. There will be optional, once-a-month surveys that ask users about how sarcoidosis affects their lives, paired with passive data collection from background health apps, such as step-tracking. The insights gained from this study may help raise awareness of the impact of sarcoidosis, with the ultimate goal of improving quality of life for people with this disease.